Diana Ducett shares her experience with the payment system for her insurance for Illinois state employees.

In 2015 she had a procedure that carried a bill of $212.  This month (July, 2016) she received a statement from a bill collector saying she owed the money. When she called her provider she found that they had yet to pay the bill- a year and one month after the procedure.

Liz German is the vice-president of operations at YWCA McLean County, and she shares her experience utilizing the state subsidized food program in the childcare programs run at the YWCA.

Liz shares about how the regulations for the state subsidized food program make it difficult to provide the children in their childcare programs with fresh food. Essentially, they are not reimbursed for anything they get at local organic farms, leading them to have to buy produce at the stores. She has noticed that the regulations lead people to serve children foods that aren’t healthy and lead to childhood obesity., especially when the kids are already eating a lot of processed foods from food banks and government assistance.

She also notes that the large amount of paperwork required for the state subsidized food program causes a large administrative burden and leads many childcare centers to drop out of the program.

Liz invites us to think about these regulations and how they can be changed to better serve our children and communities.

Betty Gilbert shares the tragic story of her son’s death at the age of 56 due to a lack of healthcare.

Though he worked for the Beloit Corporation for 21 years, he lost his health insurance when the company closed its doors and let him go.  When he became sick he tried to get on disability for liver problems- waiting three years for disability and more years for healthcare (following his job loss).

When he visited the emergency room he was told he had arthritis and sent away.

He finally received health insurance after two years, two months before he died, in time only to find out that he had bone cancer and it was past a point where anything could be done.

Betty shares her story and asks the crucial question: why can’t we provide healthcare for our people?

Julie Eide speaks about her experiences of homelessness and eviction with three young children. She has experienced homelessness twice, the second time receiving help from her church community after she was evicted and unable to find someone to rent to a family with an eviction record. However, she calls attention to the many families who falls through the cracks of social services and organizations. “There is nothing more terrifying than not knowing where you’re going to lay your head at night,” she says as she tells her story and advocates for mending the gaps.

“A lot of economic strife is due to the lack of good jobs, and too many low paying ones” she notes,  adding that the cost of higher education is also way too high, especially with the possibility of not being able to use your degree or get a job after graduation.

With these factors in mind, she calls on Wisconsin to raise the minimum wage!

Additionally, Julie shares her experience as a mother on disability for her mental illness. She still needs her children to stay with her cousin. She shares her need for a good enough job with health insurance to cover her healthcare needs and the health needs of her family, in order to have her children live with her full time.

Finally, she calls us all to vote to make a difference in mending the gaps in our society and reduce hardships for all people!

Dr. Neddy Astudillo reminds us that immigrants are not strangers among us, but valuable, loving, and hardworking members of our communities, and families- our friends, colleagues, neighbors, and relatives.

She also warns how keeping a sector of our community “underserved, unappreciated, undocumented, uninsured, underpaid, and vulnerable to changing laws that profile [them]” is dangerous to our community and impacts everyone’s lives and safety by promoting fear, injustice, and discrimination.

Dr. Astudillo calls for Immigration Reform as a “debt we have to our neighbors”- as immigrants are essential members of our communities and economies.

Wayne’s daughter experiences chronic pain- even with drug therapy her pain registers from a 4-6 on the pain scale on a good day. His daughter and her family live with Wayne because the costs of health care prevent them from being able to explore other options.

Wayne shares his story to advocate for better health care, at a lower cost, for all people. Hear his moving call for healthcare to be funded as a human right.

Ginny Spernoga is a nurse at a federally qualified health center in Madison, WI, She works with many people who don’t have health insurance in Madison, including members of the large undocumented population, and is excited to support the Nuns on the Bus mend to gaps and give everyone access to health care!

Margaret Mary Kistler was not only my little sister, she was my dear friend.

Margaret was super smart, a Merit Scholar, in fact. She was one of those folks who knew something about everything, everything about some things … and yet could talk for hours … and hours … about absolutely nothing.

Margaret marched to the beat of her own drummer, which often does not mesh well with paid employment. She primarily worked low wage or part time jobs. She embroidered fezzes for Shriners; she did office work at a flute repair shop; she came to know her way around a cash register while working retail. While she never had a great deal of money, she made enough to live independently and with her head held high.

The beginning of the remarkable journey of Margaret and the Nuns on the Bus began in a sadly unremarkable way. Margaret lost her job. She lost her health insurance. And she lost her life. In that order.

When you live on the economic margin for your entire adult life, falling ill doesn’t necessarily mean a trip to the doctor. For a couple of years, Margaret felt that something was wrong, but put off going to the doctor because she knew she couldn’t afford the care she feared she needed. While the Affordable Care Act had just been passed, it was not yet implemented. She spoke of her illness only in the abstract, not as anything for which she could afford to get help.

It wasn’t until she was too weak to answer her door that her friend broke that door down and took her to the emergency room. There, she was diagnosed with stage 4 colon cancer which had already spread to her liver and her lungs.

Her fate was sealed, but her influence was not. While Margaret was in a nursing home bed she didn’t want to be in, my wife Lynne felt a nudge, that became absolutely compelling, to go visit her. It had to happen and it had to be then, whether I could go with her or not, Lynne driving 8 hours each way. She had no idea why she had to go, but she did.

Lynne took along a Wisconsin 14 t-shirt, as Margaret had been following the protests happening at the capital here in Wisconsin at the time. Margaret and Lynne snapped a picture on the spot. Once home, when we looked at that picture … There was an undeniable honesty about it … There was a raw honesty in there. We knew something would come of it, though we hadn’t a clue what it was. We sent Margaret a copy of the picture, and asked her if it was alright for us to share it with others working on the issue of getting healthcare for all. Without a hesitation, she said, “Well, if you think that it would help, then yes!”

Mind you, Margaret was a fiercely private woman. Yet, in her fragility, in her vulnerability, Margaret had opened herself up to being seen, to being heard, to being known. If her illness and her story could be of some help to some other person, in a future she wasn’t banking on, she was all in.

When my family and I discovered that the first Nuns on the Bus tour would be in Cincinnati only two hours after Margaret’s memorial service, and only a mile from where she had lived … we decided that meeting these brave women would be our personal tribute to Margaret’s memory. Here were religious Sisters, speaking truth on behalf of people much like our own sister: that access to affordable health care and the other fibers of the social safety net meet essential human needs.

Though this is a political season, this is not about political ideology. It is a matter of life and death. How in the world can members of Congress and state legislatures such as our own, not expand Medicaid for ALL, yet claim to be pro-life? We pray that legislators’ minds be open and their hearts be broken by the realities of life and death on the economic margins.

Affordable healthcare for ALL is a pro-life stance. You would think that even a politician could understand that adequate medical care saves lives. Let’s expand Medicaid in all 50 states, or create a healthcare system that covers all, universally.

It wasn’t until a day or so after we first met these women, who were still on the road… that we saw Sister Simone holding up Margaret’s picture and sharing her story … and we thought, my God, that’s why Lynne had to go to Cincinnati … to take that picture … so that it could land in the hands of these tenacious nuns. 

Still, four years on, it doesn’t feel right to be in a world without Margaret in it. Knowing that part of her lives on in the spark for social justice brings us more healing than you know.

And now, these dear gutsy and determined women board that bus again! They will speak for those who have fallen through the gaping cracks in our healthcare system. They speak for those with empty bellies and no place to call home. They speak for families facing the deportation of loved ones. They speak for a fair wage and against income inequality. They speak for a voting system that makes it easier, not harder, for voices to be heard.

These Nuns on a Bus have asked us to step outside of our comfort zone, and they will likely ask others to do the same. Listen to them. And then listen for your own personal nudge, doing one small part of one big thing … until the day our lawmakers hear our collective voice.

Safe travels, dear Sisters. Our hearts go with you!